Understanding Your Resources

Recovery from severe brain injury and DoC may require many months and years. Thus, you and your loved one will need to make sure you have the financial, social, medical, and community resources available to support your needs long term. There are many organizations and resources available to help you and your family in the short and long term.

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Decision Making for a Loved One with DoC

How does my family make medical, financial, and other important decisions for our loved one when they are in a disorder of consciousness?

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Discharge Planning and Tips

What do I need to know when doctors say my loved one needs to be discharged?

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Long-term Needs in DoC

How will we take care of our loved one in DoC long-term?

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Legal Issues After DoC

What kinds of legal issues should I be aware of as a caregiver to someone in a disorder of consciousness?

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Advocacy and Abuse: Protecting Your Loved One in DoC

How to I advocate for my loved one? How do I recognize and report abuse of a person with a disorder of consciousness?

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Help with Finances After Severe Brain Injury

What do I need to know about getting help with our finances?

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Support Groups for Families of People in DoC

Are there support groups available that understand severe brain injury and disorders of consciousness?

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Caregiver Websites

A list of organizations and websites for caregivers and those caring for loved ones with severe brain injury

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Other Resources and Books About Brain Injury

Learn more about disorders of consciousness with these resources and books selected by our experts.

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Disorders of Consciousness Hub Contributors

Contributors, authors, and funders of the Disorders of Consciousness Hub