"I am disabled."
I spit out three simple words with about the same degree of dignity that a cat yacks up a hairball.
It was an unexpected admission that brought about unexpected emotion.
Just about every person with a brain injury I know defines life by "before and after." We count the days, months, and years since both "births." We are born into this world originally and we start lives anew as a person with a brain injury.
I am 52 years old and 3½ as well. If you are a brain injury survivor, you know exactly how this feels.
And so it is for Sarah and me. In our lives "before," we were frequent travelers. But brain injury has a way of making life smaller — much smaller.
Tough decisions had to be made during that abysmally tough first year or so after my traumatic brain injury. As my ability to earn a living continues to be compromised, we had to sell my Jeep. The monthly payment, easily made before I was hit that day by a car on my bike, soon became the cause for a monthly panic attack.
Hello, traumatic brain injury. Goodbye, Jeep!
No longer is there a sense of sadness about this as material "things" come and go. I've learned that pain comes from holding onto things I'm supposed to let go of.
Like a Jeep Wrangler ... or my old life.
In our "old lives," we were more than occasional travelers. But alas, said that Winnie-the-Pooh narrator who offers the running monologue in my head these days, many of those adventures remain in the past.
Which now brings us back full-circle to being disabled.
Sarah and I recently took a trip — one of the fewer we take. While trying to set up seat assignments, the US Airways online seat selector quickly became my nemesis. Try as I might, I was unable to find side-by-side seats for Sarah and me. I need to be painfully honest here ... this once confident traveler is now more than a little frightened by the thought of sitting alone for a couple of hours during a flight.
In fact, I was scared witless.
Over time, as life with a brain injury becomes more familiar, I am ever so slowly getting just a bit more comfortable asking for help. This gradual acceptance of my new limitations has come to me at a snail's pace, but it has come.
And I made a simple decision to call the airline.
A sincere and compassionate representative named Susan took my call.
"I am disabled," were the first three words I spoke.
I shared my challenge of being unable to find two seats together. And I openly shared that I have a traumatic brain injury.
Five minutes later, with a few magical mouse clicks on her keyboard, this angel not only has Sarah by my side for our flights, but she has moved us closer to the front of the plane
"That will make things easier for you, Mr. Grant. Is there anything else I can do to help you?" she asked.
Tears welled in my eyes; I humbly thanked her.
Brain injury recovery does not happen alone.
By far, the toughest part of my journey, the darkest time of my entire life, in fact, was the time before I met other people with brain injury ... when I walked the TBI path alone.
But I've learned that there are people along the way, some part of the brain injury community and others who are simply kind members of our shared human family, who are happy to help us find our way.
Comments (30)
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Thank you for putting into words what I've been thinking. I've had to give up so much since my stroke two years ago. I used to walk all over by myself; now I need my rollator and a companion. I can't work due to balance and vision problems. So much has changed.
Thank you again.
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It normally takes anywhere from 3-5 years for someone to admit they have a disability. I finally began telling people on the phone that I had a brain injury when they were speaking so fast that I couldn't understand what they were saying. I also learned to use humor as much as possible when it comes to the things I can no longer do - e.g., I tell people I'm two years old when I go down stairs, as I can only go one step at a time.
Thank you for sharing your story with others.
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Exactly a year after surviving a head on collision, my sisters flew me to a small town to celebrate my birthday. I did not want to disappoint them so I accepted their offer. I never told them how difficult this was for me. The thought of flying without my family, all of which were in the accident, was terrifying. My flashbacks went into hyper mode and my anxiety was almost unbearable. The only coping mechanism I could create was printing off each flight itinerary, the airport map, highlighting each pathway I needed to take to meet my sisters. I kept the phone number of my husband, mom, and sisters written down in case I got lost. All of this was kept in a clear folder so I could see each page. Each time, my anxiety rose, I would cling to my clipboard and try to memorize the information I needed for my next step.
As I waited for my plane, a man next to me was holding his dog exceptionally close. I desperately wanted to reach out and pet the dog too. I desperately wished for my dog. Yet, I was unsure of how the man would react and I was too afraid to speak to anyone. Looking back on the event and reading your article, admitting you have a disability, is not a bad thing. If I had admitted I needed help, my disability would not have defined my traveling moment. But in that case, my disability defined my every move. Now, I will have more confidence and will not let my disability get in the way of social interaction, and enjoying the flight. I will be letting the flight staff know as my family and I fly on our next journey. But, I still want my dog to go too!
Sandra Williams
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I have a brain injury due to 2 ruptured aneurysms and a stroke. This post really hit home for me. I, too, was a world traveler before my brain injury for both business and pleasure. I was also a travel agent for 20 years prior. The last 12 years prior to my new life i was a meeting manager also and traveled by myself almost monthly. Now it scares me to think of traveling by myself. What you said about "I am 52 and also 3 1/2" was totally true. I never could get the words right but that is exactly how i feel too.
I am 43 and also 3 1/2:) It took me a while to say i was disabled and it still stings to say it. I got home from the hospital last April and couldn't walk then - was still in a wheelchair. Now a year later i am working on jogging in PT! It has been a long road for sure. Did i mention that when this all happened to me, i had just had a baby and she was 4 weeks old:( Thank God for my husband! I don't know if others feel like this, but I feel really creaky every morning when i wake up and if i don't work on it daily, it goes downhill fast. Chasing after a toddler gets me going haha:)
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Thank you. That you can express yourself so beautifully is so affirming. Though I have difficulty with my brain and my spoken word working in concert, I can write? Since my re-birth, each day is such a struggle, but when I look back over the last year, I see progress and I'm proud of me. You see... I've done it on my own. Until recently, I had no healthcare so no rehab.
My most depressing moments are when my children do not acknowledge this injury though they have not been involved at all. None of the medical evidence... the hours of testing I've been subjected to...the pain or tears.... Yes, I am disabled and when I received notification, I cried. I ache still to have my "old life" back...not as much as I gradually move forward into this "new me", but all the same.... No, my daughters, this is not the life I choose to live... why is it you would believe anyone would?
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