To Share or Not to Share: Life After Brain Injury

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Comments (56)

Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.

Anonymous replied on

Hi. thank you for sharing what has happened to yourself. I am so glad you have had the same issues asI have. I get really bad vertigo and lots of whizzing in my ears. I was in a pub with friends the other night and they went off in front and I went to the ladies room and when I came out I could not remember where I was. I was so scared and it took me ten mins to find my way out. I ended up in the pub kitchen and then the cellar so I just stopped stood there and then I saw some people coming in and made my way out. I didn't like it at all. Thank you. I don't feel so alone now.

Anonymous replied on

Thank for your stories. They are very informative. I thank you for your painful honestly. My sister just suffered a diffuse axonal injury & I am just trying to educate myself so I maybe able to better understand this injury. Tracey

Anonymous replied on

Learnt to live with the lapses in memory so much so it's part of life. Can't remember why I find my self upstairs so I sit on the toilet to let everyone think that's the reason I have gone upstairs. There are a few major events I can't remember , weddings, visits to hospital, people visiting me in hospital. I see people in the street and think I should know them but for the life of me don't know who they are. Lost a few months prior to the accident and can't remember flying over the back of a car a t 70 mph. I know it happened as it was witnessed. No recollection of being in the road, taken to hospital in an ambulance, being in A& E. First thing I knew was waking up in HD unit wondering why all this scaffold was on both arms, so went back to sleep hoping it was a nightmare

Anonymous replied on

I totally agree with you, David. It's never easy to tell people, especially if they have no knowledge about brain injury and how it impacts a person's life. I'm trying to be selective on who to tell and not to tell, I found that very few people can understand the problem. Thanks for sharing your experience.

Anonymous replied on

David I am 28 years out. After my physical recovery which took basically 6 months. Plus I kinda started new and different life. I hardly ever spoke to anyone about the head injury. I didn't make it a verbal factor in my life. And though many people believed there was something different about me never actually knew I almost died and now had a new brain. I'm on the TBItribe on Facebook. It's very interesting to me to read about the struggles people have trying to live their lives in their communities. Between 28 29 and 30 years old I just knew that I had to rebuild my life. Of course having to relearn such things as speaking and reading and attending to anything for more than 5 minutes and most of the physical stuff did take up a lot of time. I commend you for all the progress you've made to be able to ride a 25 mile bike ride and do all the things that you do to get through the day. Please keep your wife informed of all those little things you notice. She really does care.

Anonymous replied on

After a TBI in 2005 I hadn't tried to ride a bike again until 2015 & I fell off! Tried again this June & fell again! Should I try again or forget it? I don't seem to have balance problems but can't ride even kiddy rollercoasters at all!

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