Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.
When I was in my early teens, I was playing on a trailer hitch and fell hard on the metal on trailer. I was unconscious for a few minutes. My parents called 911. and when they came they said I was okay, but to be careful for awhile. That happened over 7 years ago. Now, I have all symptoms of a concussion, except I also get a burning smell in my nose sometimes and I am not vomiting. I get pms and I have PCOS. My parents think I'm over reacting. Not sure what to think about myself, but I will be praying for everyone who posted a comment that has had brain trauma. Take care.
I'm years out from my TBI & I've actually declined in function. I'm now in multiple forms of OT & PT, but so far nothing has stopped my headaches. I used to be very active, but in the last year and a half, my decline has accelerated to the point that I can't manage my work, thus I freelance when I can, but it's really messing up my life. My neuro is lovely & says things take time, but as someone who has always been a perfectionist (I was able to push myself so hard for several years, that I actually did more to hender my progress) and now, it's a good day if I can go to the grocery store. I don't have a question. I'm just frustrated & sad. I've lost a lot & now my parents, who've been a big help, are older (I'm only 29) and my father is terminally ill, my mum has Parkinson's. I'm afraid for my own future. I have a trust fund, but I want to add value. I've always worked. I've yet to apply for disability because I want to do everything on my own, but I'm afraid I can't... More than that, I don't know how I can help my parents when right now, I need more help than my mum.
In early December 2015 I was nauseous and fell and hit the back of my head on a wooden door frame, I was unconscious for a couple of minutes then I went to the hospital did x ray, there was no fracture got 10 stitches and a written form from the doctor to do a CT scan, she said that I don't have to do the scan since it doesn't look severe. Went to the other hospital for the CT scan 3 months after but the scanner wasn't working. Now it's September 2016 and from time to time I get mild headaches once a while lasting 2-5 minutes at the scar on my head and on both sides alternately. What do you think?
8 years ago, I fell on ice and suffered moderate head trauma, neck trauma, and back trauma. It is hard to grasp how your life can change in just a few seconds. I do not remember all of what happened. The back pain was so bad, I ignored the head and neck issues until weeks later, I started slurring words, forgot things I had taught for decades, called things by the wrong name, and kept losing things. I went to the ER with excruciating head pain. The doctor diagnosed me with post-concussive syndrome. I had never heard of this before. Saw Neurologist who advised meds would not really help migraines triggered by the trauma. He told me to try Migravent which you can buy online and to take COQ10. I had PT for almost a year. I struggled through each day to keep my job. I felt like I got my life back and could live with limitations, but things got worse recently with ear, jaw, face, ahead, and neck pain. My family doctor prescribed Xanax. I did not want to be chained to meds with serious side effects. I started going to a wonderful, gentle, thorough chiropractor who found 3 severe vertebrae issues in my neck. Immediate improvement. I also found a massage therapist who specializes in head trauma. She does cranial sacral therapy which has been so healing. I wish I had found the chiro and massage therapist 8 years ago. If you are suffering, please consider alternative therapy. It has been such a blessing and given me hope again.
Thank you for sharing this info. I too have fallen on the ice and cracked the left back of my skull. I find your information interesting! Sounds like I need to try out these as my primary care doctor does not know what to do. I've been sent to a neurologist who does not seem to care what I have going on. The prescriptions I have been given leave me unable to function and actually make me worse. I hope you are doing better and might have an update.
I tripped going up my stairs fell to the side landing on a cinderblock in the middle of my forehead just above my eyebrows. They did CT scans not finding any fractures in my neck or scull. I know headaches are a common result of head injuries, but I feel as if my pain is growing worse. I already had a neck injury from a previous incident 20+ years ago. I just can't stand these headaches
I was in a bad RTA when I was 18. Hit by 2 cars. My right eyebrow hit a curb causing a serious brain injury. I'm now 36 and suffer with sever migraines and problems with my memory and balance. Doctors refuse to do scans and I continue to worsen
Yes indeed. NOBODY knows the pain unless they've truly experienced Cronic Cluster Migraines . They will might say, "Oh poor thing has a bad headache." Yes, everything irritates us, but they'll never really get it.
For the lady who fell off her horse and had a knot on her neck. Have you thought of seeing a NUCCA doctor. I have heard that people with such injuries can find some resolve from their symptoms. It is a cervical specific technique with no force with great results.
I had a AVM done because on MRI I requested, in left side of my brain, I had a malformation/tangle of my nerves and arteries. It wasn't caught on 1st MRI, I looked up my symptoms because doctors thought I was traumatized due to choking on food. It turned out I was right, there was a small leak, which would account for the migraines I would get and the reason why my swallowing stopped working, why I was choking when I was eating. Doctor said he couldn't fix the problem with my brain because it was in an area where if he touched it, I would die. Somehow the AVM done relieved the headaches and all of symptoms to zero. Later every time I would have head injury, my concussions would be longer and all the symptoms would get worse. Last head injury I had was when I was pushed back by my face backwards and hit my head on bed or wall, I woke up on floor. I felt nausea immediately, I felt like I was out of body, in cloud, felt feeling of sickness I can't explain- between pressure and almost head cold. I then got a bad migraine headache. I felt like this for a little over a month. In second month I still kept getting headaches, mild to severe but constant. It was getting better but still different because I was shuddering, I had problems concentrating, I would loose track of thought, my problem swallowing got worse, my vision was blurred at times, I would hear a concentrating being spoken to me but then like someone wiped the board and I didn't remember what was said except I do remember that I was being talked to, I know they said something just didn't know what. I was having difficulty speaking at times, as if I had a short circuit. The word was in my brain but my tongue would not get message to talk. Its been about 4 yrs and my symptoms that got worse varied from going back to bad and worse. When I get sick or have headache, all my symptoms get worse. Doctors are still looking into this and I'm feeling helpless and hopeless. I fear at times of death and get really worried. I especially fear to get hit on head or for my head to juggle. This is when I get a concussion and all the symptoms get worse. I'm afraid my normal way of being or close to normal will not come back.
When I was 16 I fell off my horse busted my head open had 16 stitches and a concussion with a large knot on my neck. Now I am 59 and I have had migraines ever since then. Been to a neurologist and they did a cat scan which showed I had 5 white spots where I busted my head open. He gave me migraine meds which I stopped taking because it did not help. I don't know if I need to go back and see if anything has changed since then. I just can't stand theses headaches anymore. I don't have them all the time but enough to say they hinder me sometimes. Any advice?
I hope you are able to find the help you need to improve your symptoms and give you the will to live. Bless you, and remember, even when you may not feel it, someone loves and cares for you and will grieve if you lost your battle. xoxo
I was born in 1962 in 1964 I was placed on a tricycle on a patio in front of a set of steps with a concrete slab at the bottom to this day the blood stain is still in that concrete. 300 stitches to the head and a full concussion out for days ( I don't even know how long) many other small head trama during child hood shook and slapped and knocked even knocked out. 3 major auto accidents as an adult with head neck and spine injury twice. A blow to the head by a pounding fist of nasty ex husband. Knocks on the head due to accidents later as an adult a suitcase fell in an airplane hit the side of my head. I have walked into doors . Fell and hit my head 3 times when I was dehydrated due to illness. Now I wake every night same time and can not get back to sleep nasty head ache light and sound bother me more every year and my family tells me my personality is impossible to live with now (although I would say many of the family are way worse than I am) Acupunture seems to be the solution overall that works for just about everyone so I will try that when I get the money to pay for it. I take too many pills and liver is going because of it. But depression and losing the will to live is all part of this as well so sometimes that feels like so what this is no life to live. You can not participate in almost anything without getting so sick that your down for days.
I recently had an injury at work boxes hit me in the head (glass containers) so bad that I go in and out of memory loss and thoughts smh..finally had a chance of getting my own research done and reading this article to understand my current troubles of depression anxiety and definitely not being able to sleep. It's hard to cope but I hope for better days and progress as I'm at the 2 month mark smh
I had a very bad head injury last year an I had two brain bleeds an a skull fracture and now I'm having headaches everyday but they are barley noticeable
I was hit in the head 10 weeks ago from 15-20 boxes unloading a truck at work didn't lose consciousness and finished out the day. I'm 50 year old male and since then I've suffered constant headache and ringing in my ears off balance double vision some days. Had MRI, cat scan and a bunch of other test. Seen neurologist who prescribed galaptin and other medications, all tests show normal. Meds do nothing for relief seem to be getting worse instead of better. Feeling frustrated and won't pain to go away. anyone know how long this lasts?
My son was thrown from a vehicle September of last year. He suffered a broken back and sever head trauma. He was unconscious several times and he still deal with some memory loss. He is having sever headaches much worse than a migraine. I'm calling doctor tomorrow because I as mom feel there is more wrong. Has anyone else had this?
Try asking this on Quora.com - you can get some good anecdotal information and have a wide range of resources from the Q community. I wish you relief and success.
On Sunday June 12th I was rear ended at about 75 mph causing my car to spin and jump over median coming to stop nose of car pointing south in north bound lane with on coming traffic. Within 24 hour started feeling mussel issues upper back, neck and major headache that does not allow me to get a full night sleep. I just want to drill hole in head a let pressure out. The entire left side of body is best up. But headache been making me a miserable person to the people I love. Have no desire for sex or motivation. I was taken out of work and now have to wait to get better to get my pay what is up with that..I have been seeing chiropractor But no progress with headache . Going to have MRI this week can't live like this.
My daughter suffered from a severe concussion when she was 17 (she's now 25). She was not able to control her body from shaking, and she could not walk - we put her in a wheelchair for months. Brain scan was normal! The wonderful (sarcasm) doctor told us it was psychological and that there was nothing wrong with her. She started getting migraine headaches and started fainting - where she would hit her head and get another concussion! I took her to a psychologist, neurologist, physical therapist, occupational therapist, cardiologist, chiropractor - any dr who I thought would have an answer. The chiropractor (cranial/sacral) actually did a lot of good. Then I tried acupuncture. This was amazing! After treatment (I can't remember how many, but I think less than 10), she was back to normal. No more headaches, no more fainting, and she could stand on one foot!! If conventional medicine does not work - try alternatives.
I'm an automotive instructor at High School in Ontario, Canada. On October 22nd, 2015 a jack stand under a vehicle failed and as a result a pick up truck fell roughly 5" on the top of my skull. My head bled profusely but eventually stopped. I was the only person under the truck as my students were watching the demonstration. Long story short is that I required stitches, new prescription glasses because it changed my vision, and to this day, June 19th, 2016, I still have headaches everyday, for the past 3 nights they've be waking me up between 3-4 am and I can't sleep. The Tylenol 3s have no effect on me anymore. My favorite place to hang out is in my basement in total darkness. Any quick movement of the head causes a dizzy spell, in January I passed out from turning my head too quickly and landed on the concrete floor. I've been working 1/2 days for months now and there's no signs of relief. I'm 58 years old, 1 year from retirement and I'm living the life of a mushroom??? Rob
I’m sorry to hear of your accident. In Feb/2017 I was hit in the front and top of my head by our steel plate front door as It was opened by our son and I was leaning toward it to pick up groceries. I am also at a point where daily migraine headaches are unbearable, I take as few Tylenol 3s as I can just to make it through the constant daily migraines, and I feel best in total dark.
My whole forehead is swollen daily into a raised tortoiseshell shape. Is your head visibly swollen? I had a big discovery this weekend. I do gardening every day and am constantly looking down at the ground in a low crouched position then raising my head to stand up. I realized this movement is causing blood to rush to my head, the swelling, and the migraines. I also realized wearing a ball cap that shelters the middle of my head but lets light into the sides is adding to the migraines. I do better with a wide brimmed hat that lets equal sunlight in from all angles. Given the nature of your job I wonder if the sudden change of direction movements might be causing your migraines. If you go about your actions slower, avoiding sudden left to right and up and up and down movements of your head do your migraines improve?
Former Military. Had multiple physical concussions. The brain needs certain rest. I didn't read or play video games 6 following months after incident. exercise proper nutrition and sleep hygiene. The Ketogenic diet is a proven and healthy diet for those with epilepsy or seizures/brain trauma. Healthy fats protect the brain and heart. I stay away from high fructose corn syrup, soda, caffeine, etc. I have consistent results. Not the worst headaches and manageable. This is a discipline.
I am at a loss about my head injury which happened at a concert a couple of months ago. As we were leaving the venue my sandal became stuck and i feel back and busted my head open on the brick concrete grounds and they wanted to take me to the ER but my husband drove me there since we live down the street from our hospital. Anyway 8 staples in my head and a couple of months later ..I am having so much pain in my head and my back ...my general practitioners have ordered another cat scan and other tests to rule out a hemmorage of the brain since they found it in my inner ear canal. Thank God maybe i will find out what the hell is going on! I had no idea that it takes sometime to see whats really going on. Incredible!
I was in a car accident when I was 18, I'm 45 now. I hit the windshield and had stitches on the bridge of my nose, on my cheek, lip and ear on the right side of my face as I was a passenger in the car. It was an old car, before seatbelts, so we were not wearing restraints. I have had headaches/migraines for many years. Been thru hormone therapy, diet classes, many medications, the side effects of all of those, alcohol abuse to self medicate, problems at work that goes with all of this. People who don't have these types of issues don't get it. I am sober now, on a good balance of medication, will always have to deal with the paranoia, confusion, ringing ears and pain. I have the scars on my face. I understand what all of you are going thru.
My daughter had a post-concussive migraine for an entire year. No medicines helped. Finally tried acupuncture. Pain was 90% gone in 1 hour. She had weekly appointments for a while, then decreased the frequency as she healed. But she was able to re-enter her life in this way. Everyone heals differently, but if you are in pain you should really consider acupuncture.
Post-concussion symptoms are very frustrating. You need to talk to someone to work through these frustrations. DO NOT hurt yourself, as there are many options for making life better. Please contact the Suicide Hotline 1800-273-TALK.
Thank you all for sharing your stories. I was in a car accident in 2013 and like many of you, I suffer from a constant state of trying to accept that this is my new norm. I sleep a lot. Suffer from confusion, forgetfulness irritability anger depression and the list goes on. I experience what I have dubbed as "involuntary napping" where i could be sitting somewhere reading something or watching tv and the next thing I know I'm waking up. I no longer drive at night or go very far from home. I feel like I do not even know who I am anymore and cannot trust what is in my mind at times. I feel like i get lost in my own mind sometimes searching for the words to speak or to respond to a question. The hardest part of all of this is others think you are the same as you were before the accident. Famous line "well you look fine". I want to scream. I can only hope that I have more good days than bad at this point. On my good days I run myself ragged because I have so many days where I am incapable of doing anything. Reading all these comments I finally don't feel crazy and I find comfort in knowing I am not alone. I'm SO SORRY you all suffer as I do... I would never wish this on anyone!
I fell on my 6 feet double deck bed. I dont know where i bump into coz i pass out for about 2 hours and walk up into the hospital with my blood unto my shirt, hands and especially on my head. I got 13 stitches then suffer from vomiting, head aches, nausea. Its been 8 months. Since then.
I'm experiencing the same things you are. But my insurance company has said I'm fine to go back to a normal life.. disbelieving I am having chronic headaches..
It has been over 5 years since I had a biking accident without wearing a helmet and ended up with my head hitting the cement which caused a severe head injury along with a broken collar bone, and separated shoulder. Afterwards, I blacked out for a couple of minutes. For two days I had extreme vertigo and couldn't keep anything down. A wonderful physical therapist did some therapy to help realign the crystals in my inner ear. For me, this was a cure for that issue. I also had many chiropractic visits after my collar bone and shoulder had healed. Along with that I have had extensive cranial work done. I don't know where I would be without the cranial therapy that I have had done by a very caring therapist. For some reason now though I am getting headaches daily. I have a full time job that is pretty stressful - I am hoping that is just the issue. There are a lot of wonderful things we can do to help heal the body and mind after a head injury. Unfortunately, like mentioned by others, since this is not seen on the outside, many have no idea what we go through. But I hope we can all just listen to our bodies, love them, and be patient with ourselves through each of our personal journeys.
I got in a bicycle accident too. Landed right on the top of my head EXCEPT I had my helmet on. Thank god i was wearing one and I don't weigh too much. Fractured sternum which is pretty hard to do. 3 months after accident I am getting severe headaches that last almost all day and worst of all nausea and vomiting.
I got a concussion about a year and a half ago. It healed in two months. Two months later, I got another.Ever since, I've had constant pain and ringing in my ears. I'm lucky, though. I don't have memory or working problems, and the initial dizziness has sort of faded away. Still, I'm wondering what else I can do for the pain. I see a neurologist and take anti depressants. I changed my diet to be organic and more healthy. I got my ears, nose, and throat checked, and even though my ears always ring, my hearing is perfect. I've done cognitive tests that concluded that my current brain is faster and has a better memory than most humans my age. I've been to an allergy doctor who determined that allergies aren't the source of my pain. I've taken and MRI and they said everything was fine. I've done yoga and meditation. None of this works and no one knows what's wrong with me. Some people are even convinced that I'm faking the pain because they can't actually see any physical damage. It sucks.
I don't know if it's in my head or its just be but ever since I was in an accident about two years ago my head has been recently hurting and since then I haven't checked my head for a CT scan. It was a bad car accident, both of my parents passed away including my uncle and my 16 year old cousin I survived including my little brother, my nephew and two of my other cousins. But my head has been hurting and I'm just nervous if I do have something but I haven't gone to check myself.
Hey I understand that not everyone is the same but I have been dealing with headaches constantly for 13 years and every time the weather wants to act up I can feel it and tell you that it's coming before the weather man knows it's coming. So my question is when does my headaches stop or decrease in the amount I have a day? Can anyone answer that I am so ready for this pain to go away or at least ease up.
My husband has been dealing with these headaches for almost 6 years now. Some days they're tolerable and other times he won't even come out of the bedroom he hurts so bad. He suffered a TBI after a big rig accident he was in. He was cut off by a Mercedes in upstate New York and he hit the brakes on a wet, icy road and the truck rolled three full revolutions before landing on the drivers side. His head hit every square inch of the cab and he hasn't been right since. Even doctors at UMass haven't been able to help. Amitryptilline hasn't helped him at all. I wish doctors would spend more time researching this for those of you and your loved ones who are suffering with this.
Has anyone on here had an anoxic brain injury? I have headache due to that. Looking for anoxic hypoxia injury advise. I don't see a lot of those. Thank you in advance
You are not alone I had a head injury 9 monthes ago and the pain has been so bad that I can hardly stand it. Nobody can understand unless you go thru it I am on strong pain medicine that helps very little and people just look at me like i am overreacting or that I am just crazy.what I am saying is don't give up you are not alone I pray that God will help us and others that are in our situation.God bless. help
to the last comment--- please Call Dr Mark Gordon at Millenium Health Care in Orange County California. He treats from a distance as well. Its Very common to have a hormonal imbalance which sounds like what you have, after TBI and he does specific testing and treatment. Can turn your life around! I'm currently starting there
I been suffering from my concussion for 2 years now and nothing helps or works and the pain is getting more and more severe. I been on medical marijuana for about 5 months now and nothing really has changed, doctor even increased the THC level and still no changes. Now I'm fighting for disability and was denied because I don't have physical characteristics no mental impairment but u have tried committing suicide 3 times since the injury back in August 2014. I am desperate for answers and help is there way too prove what I'm suffering from even though there's no physical characteristics? Please anyone if anyone can help shoot me an email iamLegacyy7@gmail.com
I am 4 weeks removed from a fall where I hit my head. Didn't black out, thought I was okay at the time. Next day vomiting, dizzy and realized I had a concussion. CT scan was clean and doctors kept telling me I would be better in a few days with dizziness being my main symptom. Now I get daily headaches and definitely have reached the point of frustration where there seems to be no end in sight. Wasn't more than a very occasional pot smoker prior but now I find marijuana to be the thing that helps me the most with the headaches. Anyone else medicating with marijuana?
I got a severe concussion about 3-4 weeks it ago. What I mean by severe for two days I had to stay in the complete dark and not do anything but lay in bed because my eyes hurt so bad. I've been having chronic headaches, blurry vision/watery eyes, and ringing in the ears. I got and MRI and everything was clear. I'm only 14 and I want to be able to do the physical things I normally did which was cheerleading. tumbling and stunting is a big issue because I can't flip because it makes me dizzy,and it's scary to stunt because that's how I got the concussion in the first place. AHH THE STRUGGLE
Our four year old granddaughter has a linear skull fracture. We've gone through a few days of hospital treatment, and she seems to be recovering normally. The thing we can't find info on is the fact that she wakes periodically from headaches in her sleep. Any suggestions on where to look to research this would be greatly appreciated.
The most helpful thing for me is chiropractic adjustment which includes cranials. If you have not been referred to a chiropractor, just know that everyone with a brain injury should be examined and evaluated by a chiropractor, usually an Applied kinesiologist), because they can help you without drugs. You will never be 100% the way you were because brain cells have died. You can, at least, get closer to the 100% with spinal and cranial adjustments. In my case, the pseudo-bulbar affect is almost gone, I don't hardly ever scream at the top of my lungs anymore. I certainly walk better. I still use a cane for feeling where the ground is, but my balance is much better and my gait patterns are more steady. My eyesight is still problematic, however, I no longer have saccades and I can read music and play the piano at about 75% of my expertise prior to my TBI injury. Head pain is less often, thinking thoughts is easier and less confused. Hope to continue improving is in my heart. Chiropractic care is what helps me. Medical drugs gave me terrible side effects including suicide tendencies which are not in my nature. So, no drugs for me. Chiropractic care is giving me back my life. I highly recommend it for every person with brain injury of every age. It is certainly worth a try.
I sustained a concussion at work about 6 weeks ago, the result of having pieces of wood and other objects fall off a shelf and strike me in the front and side of the head (got a pretty good cut above my eyebrow). My memory and speech was affected within 20 minutes of the incident. Since then I've had very wild mood swings, severe headaches, memory loss, sensitive to light and sound, a change in appetite, and difficulties sleeping. The worst part to date are the headaches and my difficulties thinking, speaking, and even writing. I had to withdraw from my final semester of college and haven't been able to return to work since the accident. As a teacher and a college student having my cognitive functions affected this severely has been a nightmare. It's amazing what a blow to the head to do.
As a fellow head injury person struggling with various physical and psychological symptoms I can unequivocally state that trauma and damage to the substructure of the impact area is a reality even if it is yet undefined.
Comments (569)
Please remember, we are not able to give medical or legal advice. If you have medical concerns, please consult your doctor. All posted comments are the views and opinions of the poster only.
Anonymous replied on Permalink
When I was in my early teens, I was playing on a trailer hitch and fell hard on the metal on trailer. I was unconscious for a few minutes. My parents called 911. and when they came they said I was okay, but to be careful for awhile. That happened over 7 years ago. Now, I have all symptoms of a concussion, except I also get a burning smell in my nose sometimes and I am not vomiting. I get pms and I have PCOS. My parents think I'm over reacting. Not sure what to think about myself, but I will be praying for everyone who posted a comment that has had brain trauma. Take care.
Anonymous replied on Permalink
I'm years out from my TBI & I've actually declined in function. I'm now in multiple forms of OT & PT, but so far nothing has stopped my headaches. I used to be very active, but in the last year and a half, my decline has accelerated to the point that I can't manage my work, thus I freelance when I can, but it's really messing up my life. My neuro is lovely & says things take time, but as someone who has always been a perfectionist (I was able to push myself so hard for several years, that I actually did more to hender my progress) and now, it's a good day if I can go to the grocery store. I don't have a question. I'm just frustrated & sad. I've lost a lot & now my parents, who've been a big help, are older (I'm only 29) and my father is terminally ill, my mum has Parkinson's. I'm afraid for my own future. I have a trust fund, but I want to add value. I've always worked. I've yet to apply for disability because I want to do everything on my own, but I'm afraid I can't... More than that, I don't know how I can help my parents when right now, I need more help than my mum.
Anonymous replied on Permalink
In early December 2015 I was nauseous and fell and hit the back of my head on a wooden door frame, I was unconscious for a couple of minutes then I went to the hospital did x ray, there was no fracture got 10 stitches and a written form from the doctor to do a CT scan, she said that I don't have to do the scan since it doesn't look severe. Went to the other hospital for the CT scan 3 months after but the scanner wasn't working. Now it's September 2016 and from time to time I get mild headaches once a while lasting 2-5 minutes at the scar on my head and on both sides alternately. What do you think?
Anonymous replied on Permalink
8 years ago, I fell on ice and suffered moderate head trauma, neck trauma, and back trauma. It is hard to grasp how your life can change in just a few seconds. I do not remember all of what happened. The back pain was so bad, I ignored the head and neck issues until weeks later, I started slurring words, forgot things I had taught for decades, called things by the wrong name, and kept losing things. I went to the ER with excruciating head pain. The doctor diagnosed me with post-concussive syndrome. I had never heard of this before. Saw Neurologist who advised meds would not really help migraines triggered by the trauma. He told me to try Migravent which you can buy online and to take COQ10. I had PT for almost a year. I struggled through each day to keep my job. I felt like I got my life back and could live with limitations, but things got worse recently with ear, jaw, face, ahead, and neck pain. My family doctor prescribed Xanax. I did not want to be chained to meds with serious side effects. I started going to a wonderful, gentle, thorough chiropractor who found 3 severe vertebrae issues in my neck. Immediate improvement. I also found a massage therapist who specializes in head trauma. She does cranial sacral therapy which has been so healing. I wish I had found the chiro and massage therapist 8 years ago. If you are suffering, please consider alternative therapy. It has been such a blessing and given me hope again.
P Irvin replied on Permalink
Thank you for sharing this info. I too have fallen on the ice and cracked the left back of my skull. I find your information interesting! Sounds like I need to try out these as my primary care doctor does not know what to do. I've been sent to a neurologist who does not seem to care what I have going on. The prescriptions I have been given leave me unable to function and actually make me worse. I hope you are doing better and might have an update.
Tsom replied on Permalink
Same thing happened to me still having a rough time.
Anonymous replied on Permalink
I tripped going up my stairs fell to the side landing on a cinderblock in the middle of my forehead just above my eyebrows. They did CT scans not finding any fractures in my neck or scull. I know headaches are a common result of head injuries, but I feel as if my pain is growing worse. I already had a neck injury from a previous incident 20+ years ago. I just can't stand these headaches
Anonymous replied on Permalink
I was in a bad RTA when I was 18. Hit by 2 cars. My right eyebrow hit a curb causing a serious brain injury. I'm now 36 and suffer with sever migraines and problems with my memory and balance. Doctors refuse to do scans and I continue to worsen
Anonymous replied on Permalink
Yes indeed. NOBODY knows the pain unless they've truly experienced Cronic Cluster Migraines . They will might say, "Oh poor thing has a bad headache." Yes, everything irritates us, but they'll never really get it.
Anonymous replied on Permalink
For the lady who fell off her horse and had a knot on her neck. Have you thought of seeing a NUCCA doctor. I have heard that people with such injuries can find some resolve from their symptoms. It is a cervical specific technique with no force with great results.
Anonymous replied on Permalink
I had a AVM done because on MRI I requested, in left side of my brain, I had a malformation/tangle of my nerves and arteries. It wasn't caught on 1st MRI, I looked up my symptoms because doctors thought I was traumatized due to choking on food. It turned out I was right, there was a small leak, which would account for the migraines I would get and the reason why my swallowing stopped working, why I was choking when I was eating. Doctor said he couldn't fix the problem with my brain because it was in an area where if he touched it, I would die. Somehow the AVM done relieved the headaches and all of symptoms to zero. Later every time I would have head injury, my concussions would be longer and all the symptoms would get worse. Last head injury I had was when I was pushed back by my face backwards and hit my head on bed or wall, I woke up on floor. I felt nausea immediately, I felt like I was out of body, in cloud, felt feeling of sickness I can't explain- between pressure and almost head cold. I then got a bad migraine headache. I felt like this for a little over a month. In second month I still kept getting headaches, mild to severe but constant. It was getting better but still different because I was shuddering, I had problems concentrating, I would loose track of thought, my problem swallowing got worse, my vision was blurred at times, I would hear a concentrating being spoken to me but then like someone wiped the board and I didn't remember what was said except I do remember that I was being talked to, I know they said something just didn't know what. I was having difficulty speaking at times, as if I had a short circuit. The word was in my brain but my tongue would not get message to talk. Its been about 4 yrs and my symptoms that got worse varied from going back to bad and worse. When I get sick or have headache, all my symptoms get worse. Doctors are still looking into this and I'm feeling helpless and hopeless. I fear at times of death and get really worried. I especially fear to get hit on head or for my head to juggle. This is when I get a concussion and all the symptoms get worse. I'm afraid my normal way of being or close to normal will not come back.
Anonymous replied on Permalink
When I was 16 I fell off my horse busted my head open had 16 stitches and a concussion with a large knot on my neck. Now I am 59 and I have had migraines ever since then. Been to a neurologist and they did a cat scan which showed I had 5 white spots where I busted my head open. He gave me migraine meds which I stopped taking because it did not help. I don't know if I need to go back and see if anything has changed since then. I just can't stand theses headaches anymore. I don't have them all the time but enough to say they hinder me sometimes. Any advice?
Anonymous replied on Permalink
I hope you are able to find the help you need to improve your symptoms and give you the will to live. Bless you, and remember, even when you may not feel it, someone loves and cares for you and will grieve if you lost your battle. xoxo
Anonymous replied on Permalink
I was born in 1962 in 1964 I was placed on a tricycle on a patio in front of a set of steps with a concrete slab at the bottom to this day the blood stain is still in that concrete. 300 stitches to the head and a full concussion out for days ( I don't even know how long) many other small head trama during child hood shook and slapped and knocked even knocked out. 3 major auto accidents as an adult with head neck and spine injury twice. A blow to the head by a pounding fist of nasty ex husband. Knocks on the head due to accidents later as an adult a suitcase fell in an airplane hit the side of my head. I have walked into doors . Fell and hit my head 3 times when I was dehydrated due to illness. Now I wake every night same time and can not get back to sleep nasty head ache light and sound bother me more every year and my family tells me my personality is impossible to live with now (although I would say many of the family are way worse than I am) Acupunture seems to be the solution overall that works for just about everyone so I will try that when I get the money to pay for it. I take too many pills and liver is going because of it. But depression and losing the will to live is all part of this as well so sometimes that feels like so what this is no life to live. You can not participate in almost anything without getting so sick that your down for days.
Anonymous replied on Permalink
I recently had an injury at work boxes hit me in the head (glass containers) so bad that I go in and out of memory loss and thoughts smh..finally had a chance of getting my own research done and reading this article to understand my current troubles of depression anxiety and definitely not being able to sleep. It's hard to cope but I hope for better days and progress as I'm at the 2 month mark smh
Anonymous replied on Permalink
I had a very bad head injury last year an I had two brain bleeds an a skull fracture and now I'm having headaches everyday but they are barley noticeable
Anonymous replied on Permalink
I was hit in the head 10 weeks ago from 15-20 boxes unloading a truck at work didn't lose consciousness and finished out the day. I'm 50 year old male and since then I've suffered constant headache and ringing in my ears off balance double vision some days. Had MRI, cat scan and a bunch of other test. Seen neurologist who prescribed galaptin and other medications, all tests show normal. Meds do nothing for relief seem to be getting worse instead of better. Feeling frustrated and won't pain to go away. anyone know how long this lasts?
Anonymous replied on Permalink
My son was thrown from a vehicle September of last year. He suffered a broken back and sever head trauma. He was unconscious several times and he still deal with some memory loss. He is having sever headaches much worse than a migraine. I'm calling doctor tomorrow because I as mom feel there is more wrong. Has anyone else had this?
Anonymous replied on Permalink
Try asking this on Quora.com - you can get some good anecdotal information and have a wide range of resources from the Q community. I wish you relief and success.
Anonymous replied on Permalink
On Sunday June 12th I was rear ended at about 75 mph causing my car to spin and jump over median coming to stop nose of car pointing south in north bound lane with on coming traffic. Within 24 hour started feeling mussel issues upper back, neck and major headache that does not allow me to get a full night sleep. I just want to drill hole in head a let pressure out. The entire left side of body is best up. But headache been making me a miserable person to the people I love. Have no desire for sex or motivation. I was taken out of work and now have to wait to get better to get my pay what is up with that..I have been seeing chiropractor But no progress with headache . Going to have MRI this week can't live like this.
Anonymous replied on Permalink
My daughter suffered from a severe concussion when she was 17 (she's now 25). She was not able to control her body from shaking, and she could not walk - we put her in a wheelchair for months. Brain scan was normal! The wonderful (sarcasm) doctor told us it was psychological and that there was nothing wrong with her. She started getting migraine headaches and started fainting - where she would hit her head and get another concussion! I took her to a psychologist, neurologist, physical therapist, occupational therapist, cardiologist, chiropractor - any dr who I thought would have an answer. The chiropractor (cranial/sacral) actually did a lot of good. Then I tried acupuncture. This was amazing! After treatment (I can't remember how many, but I think less than 10), she was back to normal. No more headaches, no more fainting, and she could stand on one foot!! If conventional medicine does not work - try alternatives.
Anonymous replied on Permalink
I'm an automotive instructor at High School in Ontario, Canada. On October 22nd, 2015 a jack stand under a vehicle failed and as a result a pick up truck fell roughly 5" on the top of my skull. My head bled profusely but eventually stopped. I was the only person under the truck as my students were watching the demonstration. Long story short is that I required stitches, new prescription glasses because it changed my vision, and to this day, June 19th, 2016, I still have headaches everyday, for the past 3 nights they've be waking me up between 3-4 am and I can't sleep. The Tylenol 3s have no effect on me anymore. My favorite place to hang out is in my basement in total darkness. Any quick movement of the head causes a dizzy spell, in January I passed out from turning my head too quickly and landed on the concrete floor. I've been working 1/2 days for months now and there's no signs of relief. I'm 58 years old, 1 year from retirement and I'm living the life of a mushroom??? Rob
Audrey M. replied on Permalink
I’m sorry to hear of your accident. In Feb/2017 I was hit in the front and top of my head by our steel plate front door as It was opened by our son and I was leaning toward it to pick up groceries. I am also at a point where daily migraine headaches are unbearable, I take as few Tylenol 3s as I can just to make it through the constant daily migraines, and I feel best in total dark.
My whole forehead is swollen daily into a raised tortoiseshell shape. Is your head visibly swollen? I had a big discovery this weekend. I do gardening every day and am constantly looking down at the ground in a low crouched position then raising my head to stand up. I realized this movement is causing blood to rush to my head, the swelling, and the migraines. I also realized wearing a ball cap that shelters the middle of my head but lets light into the sides is adding to the migraines. I do better with a wide brimmed hat that lets equal sunlight in from all angles. Given the nature of your job I wonder if the sudden change of direction movements might be causing your migraines. If you go about your actions slower, avoiding sudden left to right and up and up and down movements of your head do your migraines improve?
Anonymous replied on Permalink
Hello All,
Former Military. Had multiple physical concussions. The brain needs certain rest. I didn't read or play video games 6 following months after incident. exercise proper nutrition and sleep hygiene. The Ketogenic diet is a proven and healthy diet for those with epilepsy or seizures/brain trauma. Healthy fats protect the brain and heart. I stay away from high fructose corn syrup, soda, caffeine, etc. I have consistent results. Not the worst headaches and manageable. This is a discipline.
Take care, all.
Anonymous replied on Permalink
I am at a loss about my head injury which happened at a concert a couple of months ago. As we were leaving the venue my sandal became stuck and i feel back and busted my head open on the brick concrete grounds and they wanted to take me to the ER but my husband drove me there since we live down the street from our hospital. Anyway 8 staples in my head and a couple of months later ..I am having so much pain in my head and my back ...my general practitioners have ordered another cat scan and other tests to rule out a hemmorage of the brain since they found it in my inner ear canal. Thank God maybe i will find out what the hell is going on! I had no idea that it takes sometime to see whats really going on. Incredible!
Anonymous replied on Permalink
I was in a car accident when I was 18, I'm 45 now. I hit the windshield and had stitches on the bridge of my nose, on my cheek, lip and ear on the right side of my face as I was a passenger in the car. It was an old car, before seatbelts, so we were not wearing restraints. I have had headaches/migraines for many years. Been thru hormone therapy, diet classes, many medications, the side effects of all of those, alcohol abuse to self medicate, problems at work that goes with all of this. People who don't have these types of issues don't get it. I am sober now, on a good balance of medication, will always have to deal with the paranoia, confusion, ringing ears and pain. I have the scars on my face. I understand what all of you are going thru.
Anonymous replied on Permalink
My daughter had a post-concussive migraine for an entire year. No medicines helped. Finally tried acupuncture. Pain was 90% gone in 1 hour. She had weekly appointments for a while, then decreased the frequency as she healed. But she was able to re-enter her life in this way. Everyone heals differently, but if you are in pain you should really consider acupuncture.
Anonymous replied on Permalink
Today, I got hit in the head with a slinky and want to know if it's normal to have a small headache afterwards.
Anonymous replied on Permalink
Post-concussion symptoms are very frustrating. You need to talk to someone to work through these frustrations. DO NOT hurt yourself, as there are many options for making life better. Please contact the Suicide Hotline 1800-273-TALK.
Anonymous replied on Permalink
Thank you all for sharing your stories. I was in a car accident in 2013 and like many of you, I suffer from a constant state of trying to accept that this is my new norm. I sleep a lot. Suffer from confusion, forgetfulness irritability anger depression and the list goes on. I experience what I have dubbed as "involuntary napping" where i could be sitting somewhere reading something or watching tv and the next thing I know I'm waking up. I no longer drive at night or go very far from home. I feel like I do not even know who I am anymore and cannot trust what is in my mind at times. I feel like i get lost in my own mind sometimes searching for the words to speak or to respond to a question. The hardest part of all of this is others think you are the same as you were before the accident. Famous line "well you look fine". I want to scream. I can only hope that I have more good days than bad at this point. On my good days I run myself ragged because I have so many days where I am incapable of doing anything. Reading all these comments I finally don't feel crazy and I find comfort in knowing I am not alone. I'm SO SORRY you all suffer as I do... I would never wish this on anyone!
Anonymous replied on Permalink
I fell on my 6 feet double deck bed. I dont know where i bump into coz i pass out for about 2 hours and walk up into the hospital with my blood unto my shirt, hands and especially on my head. I got 13 stitches then suffer from vomiting, head aches, nausea. Its been 8 months. Since then.
Anonymous replied on Permalink
I'm experiencing the same things you are. But my insurance company has said I'm fine to go back to a normal life.. disbelieving I am having chronic headaches..
Anonymous replied on Permalink
It has been over 5 years since I had a biking accident without wearing a helmet and ended up with my head hitting the cement which caused a severe head injury along with a broken collar bone, and separated shoulder. Afterwards, I blacked out for a couple of minutes. For two days I had extreme vertigo and couldn't keep anything down. A wonderful physical therapist did some therapy to help realign the crystals in my inner ear. For me, this was a cure for that issue. I also had many chiropractic visits after my collar bone and shoulder had healed. Along with that I have had extensive cranial work done. I don't know where I would be without the cranial therapy that I have had done by a very caring therapist. For some reason now though I am getting headaches daily. I have a full time job that is pretty stressful - I am hoping that is just the issue. There are a lot of wonderful things we can do to help heal the body and mind after a head injury. Unfortunately, like mentioned by others, since this is not seen on the outside, many have no idea what we go through. But I hope we can all just listen to our bodies, love them, and be patient with ourselves through each of our personal journeys.
Anonymous replied on Permalink
I got in a bicycle accident too. Landed right on the top of my head EXCEPT I had my helmet on. Thank god i was wearing one and I don't weigh too much. Fractured sternum which is pretty hard to do. 3 months after accident I am getting severe headaches that last almost all day and worst of all nausea and vomiting.
Anonymous replied on Permalink
I got a concussion about a year and a half ago. It healed in two months. Two months later, I got another.Ever since, I've had constant pain and ringing in my ears. I'm lucky, though. I don't have memory or working problems, and the initial dizziness has sort of faded away. Still, I'm wondering what else I can do for the pain. I see a neurologist and take anti depressants. I changed my diet to be organic and more healthy. I got my ears, nose, and throat checked, and even though my ears always ring, my hearing is perfect. I've done cognitive tests that concluded that my current brain is faster and has a better memory than most humans my age. I've been to an allergy doctor who determined that allergies aren't the source of my pain. I've taken and MRI and they said everything was fine. I've done yoga and meditation. None of this works and no one knows what's wrong with me. Some people are even convinced that I'm faking the pain because they can't actually see any physical damage. It sucks.
Anonymous replied on Permalink
I don't know if it's in my head or its just be but ever since I was in an accident about two years ago my head has been recently hurting and since then I haven't checked my head for a CT scan. It was a bad car accident, both of my parents passed away including my uncle and my 16 year old cousin I survived including my little brother, my nephew and two of my other cousins. But my head has been hurting and I'm just nervous if I do have something but I haven't gone to check myself.
Anonymous replied on Permalink
Hey I understand that not everyone is the same but I have been dealing with headaches constantly for 13 years and every time the weather wants to act up I can feel it and tell you that it's coming before the weather man knows it's coming. So my question is when does my headaches stop or decrease in the amount I have a day? Can anyone answer that I am so ready for this pain to go away or at least ease up.
Anonymous replied on Permalink
My husband has been dealing with these headaches for almost 6 years now. Some days they're tolerable and other times he won't even come out of the bedroom he hurts so bad. He suffered a TBI after a big rig accident he was in. He was cut off by a Mercedes in upstate New York and he hit the brakes on a wet, icy road and the truck rolled three full revolutions before landing on the drivers side. His head hit every square inch of the cab and he hasn't been right since. Even doctors at UMass haven't been able to help. Amitryptilline hasn't helped him at all. I wish doctors would spend more time researching this for those of you and your loved ones who are suffering with this.
Anonymous replied on Permalink
Has anyone on here had an anoxic brain injury? I have headache due to that. Looking for anoxic hypoxia injury advise. I don't see a lot of those. Thank you in advance
Anonymous replied on Permalink
Please look into nuerofeedback and also cranial sacral massage therapy
Anonymous replied on Permalink
You are not alone I had a head injury 9 monthes ago and the pain has been so bad that I can hardly stand it. Nobody can understand unless you go thru it I am on strong pain medicine that helps very little and people just look at me like i am overreacting or that I am just crazy.what I am saying is don't give up you are not alone I pray that God will help us and others that are in our situation.God bless. help
Anonymous replied on Permalink
to the last comment--- please Call Dr Mark Gordon at Millenium Health Care in Orange County California. He treats from a distance as well. Its Very common to have a hormonal imbalance which sounds like what you have, after TBI and he does specific testing and treatment. Can turn your life around! I'm currently starting there
Anonymous replied on Permalink
I been suffering from my concussion for 2 years now and nothing helps or works and the pain is getting more and more severe. I been on medical marijuana for about 5 months now and nothing really has changed, doctor even increased the THC level and still no changes. Now I'm fighting for disability and was denied because I don't have physical characteristics no mental impairment but u have tried committing suicide 3 times since the injury back in August 2014. I am desperate for answers and help is there way too prove what I'm suffering from even though there's no physical characteristics? Please anyone if anyone can help shoot me an email iamLegacyy7@gmail.com
Anonymous replied on Permalink
I am 4 weeks removed from a fall where I hit my head. Didn't black out, thought I was okay at the time. Next day vomiting, dizzy and realized I had a concussion. CT scan was clean and doctors kept telling me I would be better in a few days with dizziness being my main symptom. Now I get daily headaches and definitely have reached the point of frustration where there seems to be no end in sight. Wasn't more than a very occasional pot smoker prior but now I find marijuana to be the thing that helps me the most with the headaches. Anyone else medicating with marijuana?
Anonymous replied on Permalink
I got a severe concussion about 3-4 weeks it ago. What I mean by severe for two days I had to stay in the complete dark and not do anything but lay in bed because my eyes hurt so bad. I've been having chronic headaches, blurry vision/watery eyes, and ringing in the ears. I got and MRI and everything was clear. I'm only 14 and I want to be able to do the physical things I normally did which was cheerleading. tumbling and stunting is a big issue because I can't flip because it makes me dizzy,and it's scary to stunt because that's how I got the concussion in the first place. AHH THE STRUGGLE
Anonymous replied on Permalink
Our four year old granddaughter has a linear skull fracture. We've gone through a few days of hospital treatment, and she seems to be recovering normally. The thing we can't find info on is the fact that she wakes periodically from headaches in her sleep. Any suggestions on where to look to research this would be greatly appreciated.
Anonymous replied on Permalink
is anyone doing research on this? what can be done....
8 months after being rear-ended at full speed. Daily headaches...... nothing helps...
Anonymous replied on Permalink
The most helpful thing for me is chiropractic adjustment which includes cranials. If you have not been referred to a chiropractor, just know that everyone with a brain injury should be examined and evaluated by a chiropractor, usually an Applied kinesiologist), because they can help you without drugs. You will never be 100% the way you were because brain cells have died. You can, at least, get closer to the 100% with spinal and cranial adjustments. In my case, the pseudo-bulbar affect is almost gone, I don't hardly ever scream at the top of my lungs anymore. I certainly walk better. I still use a cane for feeling where the ground is, but my balance is much better and my gait patterns are more steady. My eyesight is still problematic, however, I no longer have saccades and I can read music and play the piano at about 75% of my expertise prior to my TBI injury. Head pain is less often, thinking thoughts is easier and less confused. Hope to continue improving is in my heart. Chiropractic care is what helps me. Medical drugs gave me terrible side effects including suicide tendencies which are not in my nature. So, no drugs for me. Chiropractic care is giving me back my life. I highly recommend it for every person with brain injury of every age. It is certainly worth a try.
Anonymous replied on Permalink
I sustained a concussion at work about 6 weeks ago, the result of having pieces of wood and other objects fall off a shelf and strike me in the front and side of the head (got a pretty good cut above my eyebrow). My memory and speech was affected within 20 minutes of the incident. Since then I've had very wild mood swings, severe headaches, memory loss, sensitive to light and sound, a change in appetite, and difficulties sleeping. The worst part to date are the headaches and my difficulties thinking, speaking, and even writing. I had to withdraw from my final semester of college and haven't been able to return to work since the accident. As a teacher and a college student having my cognitive functions affected this severely has been a nightmare. It's amazing what a blow to the head to do.
Anonymous replied on Permalink
As a fellow head injury person struggling with various physical and psychological symptoms I can unequivocally state that trauma and damage to the substructure of the impact area is a reality even if it is yet undefined.
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