The more quickly a family can get help and information from a case manager about a loved one's injury and the processes for recovery, the less frustration and confusion there will be.
Produced by Victoria Tilney McDonough and Brian King, BrainLine.
About the author: Michael Paul Mason
Michael Paul Mason is the founding editor of This Land, a monthly magazine based in Tulsa. Mason's first book, Head Cases: Stories of Brain Injury and Its Aftermath, is an exploration into the harsh realities endured by people with brain injury.
Comments (2)
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Anonymous replied on Permalink
What if it's just so bad the marriage that the caregiver give up nothing else has worked trying to desperately hold on 9 years since his aneurysm it's like invasion of the body snatchers and I can't fix us we have been married 24 years 2 sons a 17 year old and a 2 year old. My mind body and soul are exhausted and I don't k
now how to try anymore any help out there or hope for us????
Anonymous replied on Permalink
My son ,43 years old,suffered a cardiac arrest and subsequently had an anoxic brain injury.
We were well informed on the day-to-day care during his stay in ICU (26 days)
After ICU he moved to a step down unit. Several days later we received a call in Pennsylvania (he was in Florida) and they said “come and get him”
Our question was: and go we here?)
The case manager gave us a list of personal care homes and told us we had 48 hours to take him out.
We received no discharge plan from the hospital. No one talked to us about follow up care.
They gave us some printed material.
We have gotten him doctors who don’t really work together & COVID has made everything telehealth. He is extremely angry and does not want to leave the house on one hand & hates where he is. I am a 72 year old retiree and my ex-husband is 74 and we both have health issues.
I call my son everyday on FaceTime and I will be traveling to Florida again soon. I don’t know what to do or suggestions for help.
This is what happens when there is no case manager/discharge plan!