It can be very helpful to hear from other families who have experienced caring for a loved one in a disorder of consciousness. Personal stories from other caregivers can be instructional and, even more importantly, help you feel less alone.
Where can I find stories about other families’ experiences with severe brain injury?
Family Experiences with Vegetative State (Unresponsive Wakefulness Syndrome) and Minimally Conscious States
From Healthtalk
Personal stories of caregivers caring for a loved one with severe brain injury
Caregiver Confessions: Taking Care of Myself Is a Group Effort
From BrainLine
Caregiver Abby Maslin describes how she took care of herself during her spouse’s recovery, including turning to others for help.